The Centre

The Centre for Rare Diseases (ZSE) is part of the University Medical Centre Ulm and the Medical Faculty of Ulm University. It comprises a consortium of numerous clinics and institutes that concern themselves with rare diseases. The ZSE's main purpose is to function as contact point for affected patients and their treating doctors.

Your inquiry to the Center for Rare Diseases Ulm

Below follows a detailed description of the process of contacting the Centre for Rare Diseases Ulm.

The ZSE Ulm is a member of the Competence Centre for Rare Diseases, which is funded by the State Ministry Baden-Württemberg.

To open these downloadable PDF files, you need the programme Adobe Acrobat Reader, which is available online free of charge. You can download the latest version of the Acrobat Reader here.

Once Adobe Reader is installed, you can view the PDF files directly in your browser by clicking on the respective file symbol.

If your browser does not support PDF files or you want to save the document on your hard drive, right-click on the file symbol (in Windows) or keep the key pressed (Macintosh) and select 'Save link as...' from the context menu. Then choose the storage location on your hard drive.


ZSE point of contact

Contact point Centre for Rare Diseases Ulm
Eythstraße 24
89075 Ulm, Germany
Email: zse(at)
Phone: +49 731 500-57080
Fax: +49 731 500-57058
Monday to Friday: 08:00 – 14:00 p.m.

Donation information

Rare diseases are our research mission with the goal to improve diagnostic and therapeutic opportunities for future generations. If you wish to contribute to this cause, please support us with a donation to the provided account.

Account for donations

Universitätsklinikum Ulm
Sparkasse Ulm
IBAN DE16 6305 0000 0000 1064 78
Designated use: D.4150 ZSE