The Centre for Rare Diseases (ZSE) is part of the University Medical Centre Ulm and the Medical Faculty of Ulm University. It comprises a consortium of numerous clinics and institutes that concern themselves with rare diseases. The ZSE's main purpose is to function as contact point for affected patients and their treating doctors.
The EU defines diseases with a prevalence of ≤5:10,000 individuals as rare diseases (RD). Approximately 7,000 of the circa 30,000 known diseases are therefore classified as RD. This large number means that roughly 30 million people in Europe and an approximate 4 million individuals in Germany are affected, of which many have no definitive diagnosis. More than 80% of RDs are genetic and therefore result in life-long illnesses. The often-late diagnosis and lack of a treatment contribute to severe courses of the diseases. Small patient numbers make the development of pharmaceutics unprofitable.
Strukturierter Qualitätsbericht des ZSE Ulm (2020)
Your request to the Center for Rare Diseases Ulm
You will find all the information you need to register using the links below or on the home page in the menu on the right.
ZSE point of contact
Contact point Centre for Rare Diseases Ulm
89075 Ulm, Germany
Tuesday 13:00-15:00 p.m.
Friday 09:00-11:00 p.m.
Rare diseases are our research mission with the goal to improve diagnostic and therapeutic opportunities for future generations. If you wish to contribute to this cause, please support us with a donation to the provided account.
Account for donations
IBAN DE16 6305 0000 0000 1064 78
Designated use: D.4150 ZSE
News and events
Schulungstermin für Kinder mit AGS am Fr, 06.10. (11.00-16.00 Uhr) und Do, 19.10. (11.00-16.00 Uhr)
11:00 Uhr | Universitätskinderklinik Ulm, Eythstr. 24, 89075 Ulm